Friday, March 2, 2018

Concussion Recovery Part 2: Stepping Back

The day after hitting publish on the first Concussion recovery post, I had a couple thoughts. First and foremost, the writing was shit and clearly a step back from where I'd been months before.  Secondly, I didn't fucking care because the point wasn't to write my masterpiece, it was simply to write something, almost anything, and hit publish.  Getting a win in this facet of life was important, perhaps vitally important if I were ever to continue.  When I initially expressed my thoughts regarding the (lack of) quality the misses thought I was preparing to delete and began protesting until I informed her otherwise.  Clearly she also recognized that while it wasn't my best work, simply publishing was where the value lied.  The third thought was that I'm going to have to revert back a bit in this discussion because I left out far too many details that are inherent to explaining what's happened.  Frankly, much of it was nothing more than a jumbled mess that seemed to leave more questions than answers.  I could, of course, delete and re-write the entire draft but to do so would remove what I believe to be an important step on this road to recovery and some clear evidence for readers fighting similar issues that they're not alone.  Recovering from TBI is a long, pain in the ass road that will be filled with victory and set-backs and we must acknowledge, learn from, and accept our failures as well as our successes on the road back.

When I left you last, I'd mentioned experiencing a relapse.  I'll discuss that shortly but first let me step back a bit farther and explain a few things.  First, I don't really remember the months immediately following the tree accident and the relapse is much more clear so it's easier for me to discuss.  Sometimes memories come back from that time frame but it seems to be the exception not the norm.  As an example:  My cousin was married post accident during the summer of 2016.  I actually attempted to drive us to the wedding (this was before Shawna was able to get her license back after getting her seizures under control) but only made it about a mile up the road before deciding I was not well enough to complete the trip.  A few months later, upon noticing their rings I asked them when they'd run off and gotten married.  That day was when I began to truly understand the severity of my trauma.

For grade school and collegiate athletes,
trainers are the first line in concussion
diagnosis and recovery.
This was not my first head trauma.  I'd gotten hurt a couple times as a young child and later would play football in both high school and college prior to the many recent advancements regarding concussions and protocols.  I had missing pieces of games and practices during those years.  Headaches, nausea, and who knows what other symptoms.  I also dealt with years of depression but I can't say for certain how much of a role head injuries played in that honestly.  If today's rules were available, I'd probably have been pulled from contact sports.  This is in NO WAY an effort to cast any sort of dispersion on coaches or training staff because honestly, they were operating under incomplete information in good faith.  Basically, they didn't know what they didn't know and it appears that certain highly visible organizations may have been hiding knowledge in an effort to protect brand and bottom line.  Unfortunate but certainly not surprising to anyone with a ounce of understanding regarding human behavior.  Thankfully today their lies and deceit have been uncovered and the next generation it proceeding forward with much more knowledge.  We all owe a debt of gratitude to those who pursued and to those who lost their lives in an effort to bring this information into the public domain.  If it hadn't been for their sacrifices who knows how many more lives would have been effected not because of actual trauma but because of undisclosed information.

But I digress.  My relapse happened sometime around the middle of June 2017.  Up until that point I'd been on what I'd thought was a decent road to recovery.  I'd begun a new position doing overnight security at a school for youth, was coaching as an assistant for the local high school baseball team, writing a blog post per week, attending to all Shawna and Caden's needs and appointments, knocking out home projects while hitting the gym consistently.  I was pretty happy with the way things were progressing.  And then I began to notice some issues.  In retrospect, while they seemed to come on all at once, that wasn't actually the case.  Even though the job was only two overnights per week, it fucked my sleep pattern for the other 5 as well.  On top of that, all the other endeavors I'd taken on now became hindrances to rest and my symptoms intensified quickly ; the biggest being anxiety, specifically the inability to calm down in a timely manner once it set in.  But while anxiety was probably the most noticeable, others such as lack of concentration, slurred speech, increases in emotions, and inability to process information productively also returned.  It was almost like being back at square one, minus the memory loss.  And because I was acutely aware of what was happening, it only served to increase my anxiety.  To know, or perhaps it was just to feel, as though you're not who you are, is a sickening, troublesome feeling that's hard to explain to those who've not  felt it personally.
Because of those who spoke out and sacrificed much, including their own lives,
more information, studies, and protocols are available to aid concussion avoidance
and rehabilitation.

Eventually, after meeting with my OT (Occupational Therapist), talking with the Misses, and doing some research, it was decided that I could no longer work that job.  Between the inherent stress that sometimes arises with such a position and working overnights, it was simply not an option. Anyone who's worked graveyard shifts knows that overnight positions can be extremely taxing on everything from the body and brain to relationships and life goals.  I finally had to admit that I don't have the ability to function and my brain apparently cannot handle the type of stress such positions cause and require.  I would have to formulate a new plan in regards to employment.  It was also during that time a quagmire began regarding a different team that I was an assistant coach of which only exacerbated the situation.  Instead of taking the break I desperately needed I elected to step up into a more pronounced position for the summer than I'd have preferred and unfortunately due to the length of time that was required to sort the situation out, I was over the top exhausted and had fallen nearly back to where I'd begun my PCS journey a year prior.  The addition of a new job would seal the deal and my high school coaching career would come to an end.  While PCS was certainly not the only reasoning behind my decision to resign my positions, it played an undeniable role.  My circumstances had changed and with it, my attitude and expectation were required to as well.


It's not always about stopping, sometimes we must simply choose a different road.

   

2 comments:

  1. Hey Justin, thanks for sharing. I can relate to a lot of what you are saying. I was recently diagnosed with PCS, but the injury occurred more than 10 years ago. It wasn't until last year that I had even heard of post-concussion syndrome and due to that fact, my road to recovery has been extremely long and challenging. I would love to connect with you, if nothing more than to have someone to talk to who can relate to what I have been through. Feel free to reach out to me anytime, I'm here to help out in any way I can.

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    1. I appreciate you reaching out and connecting Nathaneal. Even if it's not PCS specific, you certainly seem like the type of person I enjoy having conversations with and I appreciate when I can find folks like that. This PCS journey is certainly something that I wouldn't wish on others but it's always nice to find others with whom understanding is made easy. I'll be sharing more as time goes on and eventually I'd like to perhaps include an interview(s) with others if you'd be interested.

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